sick of being sick and tired...
Even though I have been unwell for 3 years now, I am trying to learn something from it all. I refuse to be in the worst situation and not come out on top of it. I have days where I am strong and where I feel as if I can take on another day of unexpected challenges. Then there are days like today, where I'm fed up and just really have had enough of being sick. Instead of feeling sorry for myself I try to have some existential comfort that I'm going through this for a reason.
I have been pondering with that realization for days. Do we as people at a certain tipping point start to aborb that 'self-help mantra' bullshit? I wonder if we as humans are just unable to accept that crap happens and that life is not fair. Or do the strong ones cope with injesting psychological hopeful babble? I know that a lot of my will to get better and to continue to have 'hope' that I will recover comes from personal character. I refuse to believe that this is 'it' for me.
I am deeply replused by how many health care professionals tell me that me being sick will help me become a 'better and more sympathetic mom'. Those comments baffle me. You would think that one could try to obtain a more constructive hopeful uttering to a sick person. Nothing makes me more replused at the idea of recovering from CFS and then happily being able to clean a shitty diaper and be more sympathetic about how 'Timmy scraped his knee'. When I get better, breeding will not be the first thing on my mind. I hope that if I ever get into healthcare, I will be able to tell other young women.... things like 'you being sick will help you create better health care policy'... Or - 'you will be the next trailblazer to help propel the CFS movement into the public'.
I can make one promise about this 'experience', is that I refuse to let it make me the forever 'sick gurl'. I hate that label. Yet at the same time I have to wear that name tag, because I am sick. I am sick, but I can't let that get into my head to much. I have to remain optimistic that I will get better. I focus a lot on visions of myself. I have a vision lately of me sitting on a dock with a laptop doing my work. I dream of running a 5k race and wearing a shirt that says 'I have CFS and I can do it'.
My counselor was worried that perhaps using 'fighter or fighting terminology' might not be of constructive use. I personally think its a great analogy. Every day I am a fighter. I fight a different fight. Some days its to remain optimistic and go for a round of 24hrs of battling aches, pain and tiredness. Other days its to accept that I have to work at reducing negative habits. I like to envision fighters, because of the fact that a fighter is always in training waiting for that victorious fight. This vision of a fighter is important to me.... and because fighters are cute like Rich Franklin, George St. Pierre etc.... :)
I also seek a lot of solace in my dreams. My dreams are vivid, wild, adventurious and crazy. I love the fact that no matter how tough it gets in this world, I can turn off the lights and be absorbed in another world where I am not sick. Dreams help, because I cannot remember being well. I have no recollection of what it was like.... and this scares me. But - upon this realization today I know that tonight I can go to bed and curl up and I am a strong woman running with my old self. I am a new person but am nightly reunited with my old self. She is still there... when those dreams stop thats when I will worry.
I am also going to get a tattoo this month. I am getting 'hope' tattooed on my right wrist. This has been an important word that I have been using every day. It means so much to me this word. No matter how tough things get I shed a few tears and go back to hoping some more. Originally I was thinking about getting 'strength', but then I realized that with this journey you do not need 'strength' you just need hope. At my final sessions of management classes this word was uttered among all of us that 'hope is necessary'.
Love has also been an invaluable asset to getting well. I am showered with constant love from A-dog. He is my best friend and boyfriend. I have never met a more nice or kind person. His patience is something that even I wonder if its humanly possible to be that consistently patient. He makes me laugh in even the most difficult and demoralizing situations that CFS has put me in. He has shown me the importance of love and laughter. I often wonder how I would be in his shoes dealing with a sick partner for 2 years. He loves me with my illnesses. So - no matter how bad things get he is always there for me. I also like how he tells it like it is...plus the obvious factor about having a cute, intelligent and attractiver partner always helps get the blood flowing :)
This summer I will be unable to work. But, I am trying to consider some activites that I can do to help break my day up. I am interested in growing my own flower boxes in my backyard. I'd also like to grow myself a herb garden. I am also saving up for a laptop of some kind...so I can get out of my dreary basement apartment and get outside to do some writing. (lol - this is just a dream).
But, I refuse to let CFS beat me down. I will not come out this without helping another person. This is what keeps me centered and focused...the fact that my experiences will be used to help one person. If I can do that... then I will be very happy.
take care - to well being and happiness...



